Today is International Ataxia Awareness Day, and it’s an important day for Arran Eleanor Creative Ltd. Back in July, our MD wrote a blog for Ataxia UK about how her pre-symptomatic diagnosis of spinocerebellar ataxia (SCA6) was what drove her to start this company. Since then, a lot has happened, so we thought this would be the perfect opportunity to catch you up.
What Is Ataxia?
Ataxia is a name given to a group of neurological disorders that affect co-ordination, balance and speech. There are many different types of ataxia, all of which are relatively rare, and these disorders can affect anybody at any age. Recent reports have estimated around 10,000 adults and 500 children in the UK suffer from a progressive ataxia, and many of these people suffer alone, as they feel the need to explain themselves constantly to the people in their lives.
Since July, Arran has launched a support group in Preston to bring together people with ataxia, as well as their friends and family. In a few weeks, we will also be releasing this year’s Christmas card designs to raise money for Ataxia UK, and we can’t wait for you to see them! It’s been amazing to meet so many people locally and bring them together to share stories and resources, and the outpouring of love and support from local businesses has been amazing.
If you’d like to find out more about all things ataxia, get in touch! The support group is meeting this Thursday, and we’d love to see you there.